PGP-UK Enrollment Process and Requirements

Enrolling in the PGP-UK is an online process. Individuals considering participation should closely review our enrolment process study guide and consent forms. To qualify for enrollment, prospective participants must complete an online exam to demonstrate their comprehension of the risks and protocols associated with being a member of the PGP-UK.

PGP-UK

Founded in Nov 2013.

Stephan Beck Lab at UCL Cancer Institute
University College London
London, United Kingdom

Requirements:

  • United Kingdom citizen or permanent resident
  • At least 21 years of age
  • Capable of giving consent.
    We do not permit enrollment through legal guardianship.
  • Identical (monozygotic) twins are welcome, but both twins must complete the enrollment process to be eligible.
Enrol in PGP-UK

PGP-UK Participation Documents

As part of our mission to promote the creation of new Personal Genome Project groups, and to help potential participants understand the risks and protocols of participation, we publicly share documents associated with the Harvard PGP group.

Please Note: The consent forms below are for review purposes only, the signature boxes are not functional in the pdf. Once participants begin the online eligibility screening and enrollment process, they are provided with instructions for electronically signing the consent forms.

PGP-UK Enrolment Process

The enrolment for PGP-UK takes around 1 hour and the steps involved are as follows:

1) Consent for Eligibility Screening	     (5 minutes)
2) Eligibility Questionnaire      (10 minutes)
3) Entrance Exam      (30-90 minutes)
4) Review of PGP Consent Form      (30 minutes)
5) Consent to Participate      (30-60 minutes)
6) Name Designated Proxies      (5 minutes)
7) Trait Data      (1 minute)
8) Identity Verification      (1 minute)
9) Submit Enrolment Application      (1 minute)
10) Submit Application Results      (3-4 days)

PGP-UK Study guide

Our study guide explains many of the key protocols, as well as risks potential participants when receiving and publishing whole genome data through our project.
Please also check the information on PGP Harvard site at : http://www.pgpstudy.org
Individuals must pass this exam testing understanding of this material before they can apply to enroll in the PGP-UK study.

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PGP-UK Consent for participation

The consent for participation, or the "full-consent". This is the main consent document participants are expected to understand and agree to when enrolling. Approval renewed 06/06/2013 and amended 20/01/2014.

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PGP-UK Consent for Eligibility Screening

Consent for Eligibility Screening, or the "mini-consent". Participants must agree to this before beginning the enrollment process. Approval renewed 06/06/2013.

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