If you wish to support the PGP-UK project, please:
Enrolling in the PGP-UK is an online process. Individuals considering participation should closely review our enrolment process study guide and consent forms. To qualify for enrolment, prospective participants must complete an online exam to demonstrate their comprehension of the risks and protocols associated with being a member of the PGP-UK.
Founded in Nov 2013.
Stephan Beck Lab at UCL Cancer Institute
University College London
London, United Kingdom
As part of our mission to promote the creation of new Personal Genome Project groups, and to help potential participants understand the risks and protocols of participation, we publicly share documents associated with the Harvard PGP group.
Please Note: The consent forms below are for review purposes only, the signature boxes are not functional in the pdf. Once participants begin the online eligibility screening and enrolment process, they are provided with instructions for electronically signing the consent forms.
The enrolment for PGP-UK takes around 1 hour and the steps involved are as follows:
1) Consent for Eligibility Screening (5 minutes)
2) Eligibility Questionnaire (10 minutes)
3) Entrance Exam (30-90 minutes)
4) Review of PGP Consent Form (30 minutes)
5) Consent to Participate (30-60 minutes)
6) Name Designated Proxies (5 minutes)
7) Trait Data (1 minute)
8) Identity Verification (1 minute)
9) Submit Enrolment Application (1 minute)
10) Submit Application Results (3-4 days)
Our study guide explains many of the key protocols, as well as risks potential participants when receiving and publishing whole genome data through our project.
Please also check the information on PGP Harvard site at : http://www.pgpstudy.org
Individuals must pass this exam testing understanding of this material before they can apply to enrol in the PGP-UK study.
Here is current version of the PGP-UK enrolment exam paper. This exam must be passed in order to be fully enrolled to the project.
The consent for participation, or the "full-consent". This is the main consent document participants are expected to understand and agree to when enrolling. Approved: 06/06/2013. Amended: 20/01/2014, 19/06/2015 and 20/10/2018.
Consent for Eligibility Screening, or the "mini-consent". Participants must agree to this before beginning the enrolment process. Approval renewed 06/06/2013.